Last October, Napo Pharmaceuticals released the results of a survey of 350 people living with HIV and AIDS on “Talking to Your Doctor About Symptoms”. The survey was sponsored by Napo and developed with input from HIV advocates Tez Anderson, Josh Robbins and David Duran.
27 percent of respondents living with HIV/AIDS reported that they currently have diarrhea, demonstrating that it is still a common problem for people living with HIV/AIDS. 56 percent of respondents reported that they have had diarrhea in the past. 79 percent of those with diarrhea reported having diarrhea for more than a year, and 61 percent reported having diarrhea for more than five years. 72 percent said their doctor asked them about symptoms, but only 31 percent said their doctor asked about diarrhea.
Tez Anderson, Founder of Let’s Kick ASS (AIDS Survivor Syndrome), commented on the survey results: “That so many PLWH reported being asked about general symptoms, but not about diarrhea, is troubling. After living with diarrhea for decades, I think long-term survivors accept it as a fact-of-life, and they don’t bring it up with providers. It’s important that PLWH inform their doctors it is an issue and to ask for non-opioid based treatment.”
“These results demonstrate that chronic diarrhea continues to be a substantial complaint of HIV/AIDS patients, and particularly in the growing group of long-term survivors,” stated Lisa Conte, Jaguar’s president and CEO.